My Eyes

visual field test results
Visual field test results from early 2013

This blog has been a long time coming. I originally set up my WordPress site in January 2012. It was a New Year’s resolution that didn’t get further than that. I think I got stuck because I was afraid to share my story. I wasn’t ready. A lot has changed since then. So let’s dive right in.

Recently, I had a visual field test done for my Usher Syndrome (more about that in the About section). This was done at the Helen Keller National Center for Deaf-Blind Youth & Adults on Long Island.

I can’t really explain how it feels to look at a picture of your eyes and see circles that are mostly black. I knew I was losing vision, but I guess I never wanted to really think that I was going blind. I’m holding on to some central vision and some patches of peripheral, but it doesn’t seem like much. I have approximately 10 degrees of vision (out of a possible 180). Life seemed pretty terrible that morning, and I definitely didn’t want to go back to work after that appointment. But I did. And life will go on. And this blog is part of my way to deal with it all.

I navigate New York City, hold down a great full-time job, work on my own non-profit on the side, and soon I’m going back to school for my MPH. I don’t want to stop pursuing my dreams, EVER. I hope to take you on the journey with me. I want to share my experience in the hope that it will help others and keep me going.

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3 thoughts on “My Eyes

  1. You are an inspiration for everyone and a role model to follow. Believe me, your blog will make a positive impact to many of us. Kudos Catarina! I am your fan. Besos, Jennifer

    1. You are an outstanding individual, capable to deal with the many obstacles that life is presenting you, and using these challenges to help others. Encourage your readers to take the fiel vision test, I do not like it, but I take it every 6 months.Some vision problems can not be prevented, like ours, but others could be prevented and treated.

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