This blog has been a long time coming. I originally set up my WordPress site in January 2012. It was a New Year’s resolution that didn’t get further than that. I think I got stuck because I was afraid to share my story. I wasn’t ready. A lot has changed since then. So let’s dive right in.
Recently, I had a visual field test done for my Usher Syndrome (more about that in the About section). This was done at the Helen Keller National Center for Deaf-Blind Youth & Adults on Long Island.
I can’t really explain how it feels to look at a picture of your eyes and see circles that are mostly black. I knew I was losing vision, but I guess I never wanted to really think that I was going blind. I’m holding on to some central vision and some patches of peripheral, but it doesn’t seem like much. I have approximately 10 degrees of vision (out of a possible 180). Life seemed pretty terrible that morning, and I definitely didn’t want to go back to work after that appointment. But I did. And life will go on. And this blog is part of my way to deal with it all.
I navigate New York City, hold down a great full-time job, work on my own non-profit on the side, and soon I’m going back to school for my MPH. I don’t want to stop pursuing my dreams, EVER. I hope to take you on the journey with me. I want to share my experience in the hope that it will help others and keep me going.